Sunday, September 14, 2014

Alternate Level of Care - Not a Silver Bullet to Fix Healthcare Woes

Alternate level of care (ALC) patients are often the scapegoats to what ails the healthcare system. They are accused of being overly expensive bed blockers who use up more resources than they need and prevent somebody who needs a higher level care from accessing those services.

I would argue that the system does not adequately understand the issue of alternate level of care patients, that alternate level of care patients might not use as many resources as they are accused of using, and that if the system addressed the problem of ALC it does not follow that access to healthcare, and in particular a reduction in wait times to care would follow.

First, the system does not adequately understand the issue of alternate level of care patients. It should be noted that all patients who are not "acute care" patients are "alternate level of care" patients. This would include patients who are admitted and waiting for a procedure (pre-procedure ALC), as well as patients who are "well enough" to be discharged but cannot be discharged because of inadequate post-discharge care environments. The problem of pre-procedure ALC is not the same as the problem of post-procedure ALC but rarely are the two kinds of ALC looked at separately. Typically, when people think of "bed blockers", they are thinking of patients who are adequately recovered from their illness or surgery to be discharged but cannot be discharged because they still require some level of care, or their home environment is inappropriate. Some of these patients will not need a permanent placement in a long-term care home, but rather need a place where they can recover further before returning home or are waiting for home care or informal care providers to be available to provide for their needs. At any rate, the needs and reasons that those patients are ALC needs to be better understood before leaping to the conclusion that building more long-term care facilities is the solution to the problem.

Second, on the issue of cost it is erroneous to assume that the "average cost" of a hospital day is the appropriate cost to attribute to an ALC patient. The average cost of a hospital day is an aggregate number that reflects the costs of "high needs" patients and "low needs" patients - it is all of the costs of hospitals divided by all of the hospital days. The mere existence of a patient in a hospital does not attract spending on that patient. It is absolutely ridiculous to think that an ALC patient is as resource intense as a patient who is within the first 48 hours post-surgery, or who is acutely ill, yet - declaring that an ALC patient costs the same as these other patients is often what happens in the hand-wringing over ALC. If it takes 5 nurses to care for 20 acutely ill patients, those same 5 nurses might be able to care for 50 "alternate level of care" patients, or perhaps nurse aides are adequate to address their needs. Further, it may be desirable to have some "less resource" intensive patients in the mix as it provides for a bit of a break. Do we really want a system where nurses are working at the limits of their capacity, all the time? What might that mean for rates of medical error? What might that mean for rates of nurse burnout? What might that mean for rates of occupational injuries among nurses? It is even imaginable that having these patients in hospital might be the most efficient way to address their needs under some circumstances. In short - do not expect resolving the ALC problem to save as much money as is often estimated. If the ALC problem were adequately addressed we would see the average cost per patient day increase, not decrease.

Lastly, because governments set health budgets, even if the beds were available in hospital - it is a heroic assumption to think that the number of procedures performed would increase by any substantial amount. To the extent that money is actually saved and could be reallocated to provide access to care, some additional surgeries might be performed. However, the increase in access is likely to be far less than what is often imagined - just because a bed or an OR is available in the public system does not mean that it will be used. Unless governments are willing to spend more on healthcare, they will simply reduce the number of beds "staffed and in operation" or will close OR's to manage budgets.

Wednesday, September 10, 2014

One Year From Now: First School Days

A Year From now my daughter will be heading to her first days of kindergarten - she will start her academic journey. As a parent, I know she already has some tremendous advantages, and that if she needs any help along the way that we will do what we can and what needs to be done to ensure that she is able to reach her potential. Our plan was to send our children to public school, at least for their elementary years. We have every confidence in the curriculum. We have every confidence in the ability of public school teachers to inspire learning - we know that there are many dedicated individuals who work tirelessly every school day and every other day to not only do their job, but to do it well. We appreciate the diversity in public school classrooms and feel that it is a benefit to our children.

However, the dispute between the BCTF and the Government, now has me asking some questions about the school system, about how it works, and about how it might be in a state of dysfunction going forward. It has me questioning whether or not the public school system is "healthy" - if it is a place where teachers feel they can innovate and practice to the fullest of their abilities? A place where all students have their needs met? It has me questioning the statistics that the "outcomes are the best in the world" and wondering if those statistics are subject to a kind of statistical slight of hand. Not that the statistics are wrong, just that they fail to tell the full story or have been subjected to cherry-picking. I am wondering about the culture of the public school system - about the relationship between those who teach and those who manage the system.

And I am left with a sense of trepidation and dread.

I fully support a universally accessible, public education system that performs well and meets the needs of the students it serves - but, I have a hard time coming to the conclusion that the system in British Columbia is where it needs to be in order to be a system that performs well, and meets the needs of the students it serves. A system where there is little gap between what the people who work in the system are capable of and what they actually achieve. I am very worried, that given the rhetoric and propaganda, the posturing, and the statistics - that what should be, is and will be, very different from what my daughter and son will actually experience if they go to public school.

First, I have serious concerns about the adequacy of funding in the school system. I know on a per-capita basis student funding has increased at a rate that is slightly ahead of inflation. However, that statistic hides a lot of details and in isolation actually says very little about whether or not that level of funding is "adequate". It fails to take into consideration changes in the composition of the population being served. Are there more high-needs students being served? Are there more students who are facing food insecurity or home instability? How has technology changed, is the system expected to deliver the same things it did 10 years ago, using the same tools? A proxy for adequacy is to look at the funding in other jurisdictions (again a lot of nuances, but in a pinch it will do) - and in British Columbia public school funding as 2010/11 was about $750 less per student per year than the Canadian average. Further, there is some argument to be made that funding all public schools equally at a per student level leaves a lot to be desired in the way of equity as schools in "better-off" neighbourhoods may have a much easier time suplementing their budgets than schools in economically disadvantaged areas. As a result, public funding might be adequate in some areas and inadequate in other areas. However, unlike in health, there is little measurement of the supplemental spending, the private spending, in education.

Second, in terms of outcomes and what is measured, again there are a lot of nuances and considerations to be made. The catchment school that my children would attend, has good outcomes. It also is in a very middle to upper middle class neighbourhood. Consequently, the students who attend might not be grappling with some of the challenges to learning that other students face. There might not be as many who are learning english as a second language. There might not be as many who face food insecurity. There might not be as many in adequate housing. There might be more students with parents who hold post-secondary credentials. There might be less unemployment. There might not be as many with absentee parents. There might not be as many who struggle with the tab for school supplies or field trips. There might be more parents willing to engage tutors to imporve academic performance. The students might be more likely to have a regular family doctor and to have thier health needs met. There might be more parents willing to chip in to fill the gaps in the budget for class room supplies. There might be fewer students waiting for psych-ed assessments simply because their parents have expedited access by paying out of pocket. As a result, the funding that follows students as having special learning needs might be more likely to be available, simply because a greater share of those students will have been identified. (I do not believe the government publically reports how many students are on the wait list for psych-ed assessments and what their average wait time is). In short, the outcomes observed are not entirely a result of what was done within the context of the school system.

Lastly, and perhaps my biggest area of concern - is the state of the relationship between those who manage the school system (government and administrators) and those who are on the front lines - the teachers. I have come to the conclusion that high-performing organizations are able to return exceptional results with the resources they have because they focus on two things: (1) empowering their staff to work to the fullest extent of their capabilities; and, (2) meeting the needs of their customers. There does not seem to be a whole lot of collaboration. There does not seem to be a whole lot of respect. There does not seem to be a lot of trust. There does not seem to be a focus on students and what they need from the education system (which might not be the same thing in all areas). There does not seem to be genuine leadership. There seems to be a lot of ideology, and a lot of frustration. That is not a recipe for innovation - that is not a recipe for "being the best" by any length of the imagination.

When I think of what the public school system should be capable of doing, particularly in a developed country with adequate resource to fund it, there is not a doubt in my mind that it would be more than adequate to meet the needs of my daughter or any other child in British Columbia. However, now less than a year from the time that my daughter will enter the "school system" - I sit very apprehensive. I suppose I could consider myself fortunate that if push came to shove, private school would be an option for us, but there again it disturbs me that the government would benefit from that decision with a substantial savings from not having to meet its full funding obligation with absolutely no requirement to redirect the money saved into the public system. Again, it seems wrong that there is an incentive for the government to encourage parents to opt out of the public system.

Tuesday, September 2, 2014

The Paradox of Taxpayer Value

Something awful happens when a business focuses its resources on achieving shareholder value. Things are done that improve the bottom line, but risk the long-run viability of the business. Before long, it’s a lean mean business machine that is unable to deliver because of high staff turn-over and abysmal customer satisfaction. Without the right staff, and without a demand for product, the writing is on the wall. It’s not that shareholder value is not important, it is – but rather that, the road to shareholder value is paved with having the right people to do the right things, and having a product or service that customers want, that meets their needs. Shareholder value is a happy side-effect to being successful in business, and paradoxically, when companies focus on shareholder value instead of the things that lead to business success, companies fail.

Despite clear indications that focusing on shareholder value leads to corporate dysfunction and failure – the parallel concept in government, “taxpayer value” has grown to be the dominant focus. The focus is on achieving the lowest possible tax rates – both corporate and individual. Unfortunately, a focus on “taxpayer value” will lead to the same dysfunction that it yields in the corporate world. There is reason to believe that the road to “taxpayer value” is paved by having the right people do the right things, and providing high-quality services that meet the needs of the public.

The relentless focus on “taxpayer value” has resulted in a situation where there is a lot of frustration – and seems to be leading to a situation where the government struggles to attract and retain the best and brightest and seems to be struggling to provide high-quality services that meet the needs of the public (particularly in the healthcare and education sectors). The government seems content with a command and control philosophy – even though, it seems that the world has shifted towards collaborate and innovate. I do not believe, absent a shift in thinking and a change in course, that this will end well.

If companies can shift their thinking and recognize that the road to shareholder value is paved by focussing on their human resources and their customers – why can’t government be capable of a parallel shift in thinking and recognize that the road to taxpayer value is paved with employee engagement and services that meet the needs of those who use them? There is nothing in particular about government that makes collaborate and innovate impossible - rather, all that is needed is the courage to do so, and the commitment to the public service and those it serves.

Sunday, August 31, 2014

Ethics and Single Payer Healthcare

Ethics can be described as the art of doing the right things for the right reasons. Recently, a family doctor (Dr. Brcic) writing for the Tyee claimed that private for-profit healthcare in BC had egregious ethics because the finances of for-profit care were obscure, accessibility of for-profit care was limited, and that individuals coping with pain and illness were vulnerable.

However, in claiming that the ethics of for-profit care are egregious, it would be a large error, an egregious one, to assume that the ethics of single-payer care are any better. Perhaps what is striking and often ignored are the numerous ways in which conflicts of interests and breaches of ethics occur because of the single payer system and how it is structured.

First, by prohibiting competition in the healthcare sector for medically necessary services and being the sole provider of those services, government is in a conflict of interest. It has a political interest in making it look like the system performs well. It has a financial interest in limiting the amount of money spent on services provided. It has both a political and financial interest in limiting accountability for medical error and system failures. It is fair to say that many measures of the system are cherry picked to demonstrate good performance or obscure poor performance. The system does not measure real wait times. The system does not measure care demanded but not received. The system takes credit, for things that are likely the result of other socio-economic changes. Holding the system to account for medical error, or even medical malpractice is notoriously difficult in Canada. Is it particularly ethical that a person wanting cosmetic surgery likely faces a much shorter wait time than a person in need of pelvic floor repair? Is it particularly ethical that a consumer who buys a faulty car likely has more recourse than a victim of medical error?

Second, by making doctors accountable for system sustainability it puts doctors in an unenviable position of being in a conflict of interest when it comes to the best interests of individual patients versus the best interests of the system. Doctors need to be able to focus on the needs of their patients without worrying about the needs of a system.

Third, a single-payer system often results in an arbitrary violation of an individual’s right to medical autonomy. Rather than a person being in charge of what is done, and when, the system determines which choices are available and controls access. If a service is medically necessary, an individual is at the mercy of the system and the system’s assessment of the importance of the condition and accessing treatment. The system assumes (wrongly) that all individuals affected by a condition are impacted in the same way and fails to adequately reflect the wide variety of circumstances that individuals contend with. Further, because of the political nature of a single payer health system, conditions that have a high degree of stigma, or that affect few individuals may have a difficult time jockeying for a fair share of the resources needed. Is it particularly ethical to withhold access to treatment options and care, when the resources are available (upwards of 16 percent of specialists in Canada are unemployed, and more are likely under-employed), simply because public tax money is unavailable, but private resources are available? Is it particularly ethical to deny an individual the right to make medical decisions for themselves, because those decisions do not conform to the decisions the average taxpayer would make?

It is perhaps important to remember that politicians are not always renowned for their ethics, and it is an egregious assumption to declare that doctors are willing to abandon their ethics in favor of profit in a private system.

Wednesday, August 27, 2014

The Fine Art of Feedback - A Lesson for Fraser Health

Feedback is a gift - those who provide it are being brave in doing so, they are providing an insight into not only want went wrong (or conversely well) but how to do better in the future. It's not easy to tell someone else or an organization that they failed you. When a person provides feedback, they do so in the hope that someone else will not be failed in the same way. They do so in the hope that by being open - by exposing themselves, that they can affect positive change. They do so in the hope that their words do not fall on deaf ears.

The easy thing to do, is to defend against the criticism. People and organizations receive feedback as a threat - a threat to their viewpoint. Further, it is difficult to admit that what was done or not done caused real harm to another person. It is difficult to admit that change is neccessary. Particularly difficult when the organization or individual is heavily invested in their point of view or way of doing things.

This past week, Fraser Health got the gift of feedback. The articles, on Today's Parent, and iVillage and comments on those articles are a treasure trove of information that can be used to do better - to provide quality care to all moms, to learn.

However, rather than take the gift as an opportunity to do better, to initiate changes to better serve moms, Fraser Health took the easy way out in their response. Which basically reads like - the choice is yours as long as your choice is the same one we'd make for you, which is to breastfeed, unless it's absolutely not a physical possibility.

So what's the problem?

The problem is that the health and well being of ALL women at a time of exceptional health vulnerability (not just physical health vulnerability, but also mental health vulnerability) needs to be supported. The problem is that a health authority can not just say that they are available to support the needs of those who make the choices they deem to be the 'right' choices. A health authority can not just substitute ideology for quality care and neglect the needs of those who either cannot or choose not to breast feed. The problem is that the right to do what one pleases with ones' own body is sacred and that those choices need to be made out of free will, not coercion.

The problem is that health care provision should never come with a big heaping helping of unjustified guilt and shame, as that generates stigma and undermines quality care.

So what would be the right response, in this situation? How could Fraser Health make the most of the gift of feedback that they've been given?

The right response would be to acknowledge that real harm has resulted from the policy - harm that Fraser Health is committed to remediating. The right response would be to include those who have been brave enough to call out Fraser Health in it's approach to new moms to develop a new approach to infant feeding. The right response would be to develop an infant feeding strategy that treats grown women, new mothers, like adults and respects their right to decide what to do with their own bodies. The right response would be to commit to support all women in the provision of quality healthcare during pregnancy, childbirth, and the year post-partum and to encourage feedback, and to use that feedback to do better.

Fraser Health via twitter has indicated that they are reviewing and would like to talk and has asked for my contact information.

I am hopeful they are now willing to listen, and will ultimately find their way to doing the right thing.

Tuesday, August 26, 2014

Infant Feeding Declarations: A Violation of Quality Care

Quality care begins with an unwavering commitment to meeting the needs of patients by providing informed consent and collaborating on care plans in a spirit of shared decision making. That means working with patients to understand what matters to them, it means providing the benefits and risks of the options available, and it means respecting their decisions. Stigmatizing certain decisions does nothing to promote health and well-being of any patient – including mothers.

As such, it is disturbing to see quality care take a back seat for some new mothers in British Columbia as health authorities fail to support all new moms in what is perhaps one of the most health challenging times of their lives. Specifically, the “Infant Feeding Declaration” that is being hoisted upon women is a reprehensible violation of the duty owed to these women as patients, a duty to provide the care that best meets the needs of mothers and their babies, a duty to provide informed consent, and a duty to foster shared decision making.

In the “Infant Feeding Declaration” women are told of the benefits of breastfeeding and the risks of formula feeding. Further, they are asked to make a promise about their future actions regardless of the circumstances they might ultimately face. Imagine being told that by feeding formula you are providing your child with less than the best start in life – and the additional guilt that is brought on by the feeling that you “broke a promise”. Imagine the stigma associated with even admitting that you happened to use formula.

How does any of that contribute to good care?

Frankly, Fraser Health, and any other health authority in British Columbia or elsewhere deserves to be told that treating patients in this way – new mothers, grown women- is wrong and needs to end. All mothers deserve support as they begin motherhood - all new mothers and their babies deserve informed consent and shared decision making. All new mothers deserve to feel that they can be honest about how they feed their children with their care providers – and that means health authorities should provide care and hold the judgement.

I encourage you to tweet (@FraserHealth) or email them and let them know you think they’ve gone to far. Demand better!

Monday, August 25, 2014

The Irony of Insisting That "Patients Must Demand Better Care"

Ever read the statistics on Malpractice suits in Canada? Maybe peruse the reports from the BC Patient Care Quality Office? Read up on the incidence of medical error? Maybe you have read the latest Commonwealth Fund report on healthcare in Canada – you know the one that places Canada second to dead last among OECD countries in terms of health system performance? Are you at all familiar with who the patients who use the health system actually are? Are you familiar with how the system is structured?

There are those who insist that patients are the ones who should be responsible for changing the healthcare system – that patients should demand better care. It is a shame that those who take this stance have not really given much thought to the reality of being a patient. It is a shame that they seem to have neglected that it is one thing to “Demand Better Care” and quite another to have the demand that is made, heard and then actually result in “Better Care”. It is a harsh truth that there are patients who have been “Demanding Better Care” – in whatever ways they can – but that many of these patients find that their demands are met with the same indifference that the demands of a toddler asking for a non-existent popsicle are met with.

It is all well and good to think that patients should have the ability to demand better care, and that those demands should result in meaningful and positive change. But the reality is that the system is designed in such a way, that the patients are the people ‘in the system’ whose voices are least likely to be heard but who are impacted most when the system fails.

Think about it – think about the resources at the disposal of the government. Think about the organization of doctors, nurses and healthcare providers. Think about the knowledge of “the system” that these other parties to the system have. Think about the levers available to affect change in the system – and exactly how few of them are available to patients. Now think about the reality of facing a health challenge – and then having the burden of “Demanding Better Care” hoisted upon your shoulders when you are at the mercy of the system.

As it currently stands, patients in Canada are in a position where they have tremendous potential to affect meaningful change, but until those who are in control of the system meaningfully empower patients to affect that change, they remain unable to do what they are being called upon to do.

Thursday, August 21, 2014

Imagine Being Unable to Read - Save Literacy Victoria!

This morning I was shocked to hear that the only free resource for adults with literacy challenges in Victoria is going to be closing its doors as of August 31 due to a lack of funding. This is a tragedy in the making - and if it can be averted, it should be.

Imagine for a moment what it would be like to try to cope in today's world without an adequate level of literacy. Imagine being unable to apply on the vast majority of jobs. Imagine being unable to read and understand the directions on your medication. Imagine being unable to understand the directions to prepare your food, or that of someone you love. Imagine being unable to access the assistance available to you because you cannot fill out the forms. Imagine trying to be able to vote, but being unable to understand the ballot.

Literacy is a functional, foundational skill that enables and empowers individuals to engage in today's world. Without literacy, the risks of unemployment, poverty, homelessness, and disability increase tremendously. By improving the levels of literacy to those most in need of assistance, the ability of individuals to help themselves is dramatically increased.

In 10 days, Victoria will lose one of its tools (and perhaps one of the most effective ones) in the fight against crime, disability and poverty.

I note that the Literacy Victoria has a donate button on its website - maybe if enough people take action, maybe tragedy can be averted.

News Story: Literacy Victoria website

Wednesday, August 20, 2014

Bad Evidence Drives Bad Decisions and Bad Policy

There is a saying: “Bad evidence drives bad decisions.” Unfortunately there appears to be growing mountains of bad evidence (or misinterpreted evidence) when it comes to maternity care, and that bad evidence is being fed into bad policy that then results in bad practice and ultimately moms and babies who suffer. Sadly, some of the bad evidence is likely a result of a backwards cycle of evidence and policy where by a policy is developed based on ideology or theory, and then evidence is sought out to support the policy or practice after the fact.

It’s a logic (and arguably ethics) fail of elephantine proportions.

A failure that has yet again been demonstrated in yet another study, widely reported by the BBC: – this time finding that breastfeeding cuts depression risk.

The first big red flag – the thing that should cause policy makers and their brethren pause for thought is the real finding of this study (as opposed to the trumpeted headline) – which is the following: There is a large increase in the risk of depression in women planning to breastfeed who are then unable to do so.

Think about that for a moment, women who successfully breastfeed, who manage to fulfill their objective are seen to have a lower risk of depression (50 percent decrease in risk), while those who plan on, but ultimately find that they cannot, for whatever reason – suffer a large increase in risk of post-natal depression. It is remarkably similar to a recent study that found that women who had births that were unlike the births that they had ‘planned’ were at increased risk for post-natal depression.

So what are the policy implications of this study?

In the news article, the conclusion is drawn that mothers should be encouraged to breastfeed and that there are so many benefits, and that more support to breastfeed is needed, but those who “fail” should be identified as being at risk and health visitors should keep an “eye” on those women.

So in short, the policy response to this study is to keep doing what is likely causing the observed relationship between breastfeeding and depression. Applaud and support the “good mothers” who breastfeed, and further stigmatize those who either choose not to or find that they are unable to breastfeed.

I am dumb founded at the sheer lack of insight as to what ought to be done in response to this study. It seems incredibly clear to me that the right policy response, is to build resilience among all expectant mothers as many might find that for whatever reason they are either not wanting to or not able to breastfeed and by supporting them in the choices that best meet their needs and those of their babies. That would mean toning down the incredible amount of pro-breastfeeding/anti-formula propaganda that mothers are exposed to. That means sending different messages about the meaning of being a “good mother” – messages that focus on outcomes, not process and contribute to a feeling of confidence in what is to many a challenging and difficult new role.

Monday, August 18, 2014

Culture Eats Strategy for Breakfast, Even in Healthcare

If strategy alone were adequate, there would be no waits for healthcare, there would be no unmet health needs, there would be no waste. If strategy alone could solve the problems that are being faced, it would have already done so. There has been no shortage of strategy - indeed there are entire government branches and divisions dedicated to "planning" in the healthcare sector. As such, you will have to forgive my cynicism and skepticism with respect to the idea that a Seniors' Strategy alone will be enough to navigate through the coming decades of healthcare challenges. Further, there is part of me that thinks that yet again, the generation before me (boomers) is lobbying loud and hard to reallocate resources to its own interests and perhaps away from the interests of the generations that follow.

After much thought, I have come to the conclusion, that the biggest problem in healthcare is not strategic - but rather cultural in nature. The culture of the healthcare system is anachronistic. It is bureaucratic and resistant to change and innovation. The culture of the healthcare system is hierarchical with a clear "chain of command" - it has evolved into difficult to break silos. The culture of healthcare is to view the current organization of healthcare (a public monopoly on the funding and administration of medically necessary services) in Canada as being sacrosanct. The culture of healthcare disempowers patients, seeing patients as a demand on the system, rather than a potential resource. In large part the culture of healthcare also disempowers those who work within the system. The current culture, is very much so focussed on delivering a system that minimizes the expense to taxpayers.

The trouble is, that the culture of healthcare, itself, is not sustainable.

Further, this cultural sustainability problem is likely a far bigger problem than (and maybe the cause of) the financial sustainability problem.

If an organization cannot engage and innovate – how can it reach the limits of its potential? If an organization drives away, or causes its best and brightest to burn out – how can it reach the limits of its potential? If an organization cannot tolerate a diversity of viewpoints and perspectives – how can it reach the limits of its potential? If an organization cannot adequately identify the needs of those it serves – if it cannot listen (and hear) what they (patients) need – how can it reach the limits of its potential? If an organization is unwilling to identify its weaknesses, and to be accountable for them – how can it reach the limits of its potential? If an organization, allows resources, to go untapped – how can it reach the limits of its potential? If an organization is focussed on process, rather than meaningful outcomes – how can it reach its potential?

It is a near certainty, that if a “Seniors’ Strategy” is developed - the dollars to fund the strategy will follow, but it is less clear whether or not the strategy will actually solve the problems that it is intended to tackle. It very well may be just another strategy on the mountain of strategies – that fails to meet its potential because it will be strangled by the culture of healthcare.

Indeed, culture eats strategy for breakfast, even in healthcare.

Note: Musings here have been inspired by Dan Pontefract's Flat Army: Creating a Connected and Engaged Organization, particularly as they apply to healthcare organizations and more broadly the healthcare system.

Wednesday, August 13, 2014

Moving Ahead by Turning Back Time

Out of a certain economic need, there was about a year, now more than a decade ago, that I spent as a freelance economic consultant. I set up a small home office and set about networking to get contracts with slightly larger and more established firms. I had just finished my Masters degree and had limited experience, and yet I was able to pay the bills (albeit much smaller back then), undertake interesting work, and develop my skills.

However, there was a fair bit of uncertainty – you never knew when you would go through a dry spell and there would be no work to undertake, and being young and wanting to get established, there were several advantages to securing traditional employment. After all, getting a mortgage as a self-employed person can be daunting - and maternity leave for the self-employed is pretty much unheard of. Further, employment under the right circumstances could offer a kind of camaraderie and mentorship that is difficult in solo-practice. At the time I was offered the job with the Vital Statistics Agency in Victoria, the firm that I was primarily sub-contracting with in Vancouver was also ready to offer me a position. At that time, a government position in Victoria, seemed as though it would be the better choice for the foreseeable future – less traffic, cheaper houses, and the much coveted “government pension”.

I was lucky, the person who I worked with was bright and engaging – and fed me a steady diet of interesting work for years to come. He exemplified the kind of leader that inspires those he works with to do good work, the kind of leader who knew the skills of his people and leveraged them to their best use. The kind of leader who was adept at getting interesting work to do, sharing that work with others, and doing what he could to make the work of others better. A leader who embraced innovation, collaboration and communication – he took leadership seriously, it was not something done off of the side of his desk but was part of who he was, a way of life. Under his leadership, our group was reorganized into the main Ministry of Health, grew to the size of a branch and the scope of work was broadened. There was no fear of approaching him with a workplace problem – his door was open and he had invested the time to develop the relationships in the first place, he was not just empathetic but compassionate and did what he could to solve the workplace problems of others. Under his leadership our work group had some of the highest engagement scores in government. The years that followed were productive and largely happy.

It was truly a good place to work, a place with a soul, with a purpose, and a community.

Then there was a scandal – but the group survived. Then I went off on my first maternity leave. The experience of the birth of my daughter reverberated throughout the rest of my life – and was still having large impacts on myself when I returned to work. Then, shortly before my second maternity leave – our leader moved on to the next chapter of his career. I went on my second maternity leave in August, and another scandal broke in September. The following January, one of those involved in the scandal committed suicide. When I returned the following September, although I inhabited the exact same office – it was not the same place. In the time since the birth of my daughter, the workplace had transformed.

So now I can either work towards regaining what once was where I’m at, in the ways that I can (not convinced this is possible, given recent evidence of an incompatible culture); live with the way things are (unsustainable) – probably a recipe for depression, poor productivity and frustration; move on to another position in government and hope for a better place – but this would likely mean leaving health behind; or I can take a leap into a new direction – into a new context where the work I do is better aligned with who I am.

If I had the skills and experience (and Twitter, and LinkedIn and Facebook, etc.) that I have today, ten years ago – there is no doubt in my mind that I would opt to be a master of my own work environment – a fully collaborative partner in the work I do and how I do it. In truth, even while employed, I have been lucky to be a fully collaborative partner in the work I have done for most of my career. Perhaps to move forward, perhaps in my journey to strive for better – perhaps it is time to turn back the clock when I step into the next chapter of my work life.

Monday, August 11, 2014

Public Health Challenges Require Compassion and Understanding, Not Shame

The health challenges that result from obesity are significant – it increases a wide range of risks and makes medical treatment more complicated. There is a reason why doctors are concerned when their patients are at an unhealthy weight – because, obesity is often a pre-cursor to poor health and may result in poorer outcomes from medical procedures and health challenges (like pregnancy).

The following video from the Huffington Post, shows an obese patient in an ER after suffering a heart attack – the patient is 32, 5’9” and 300 pounds, and the doctor asks “How the hell does that happen?”. The video then rewinds on the man’s life, and shows a litany of what people assume about the obese. Birthday cakes, candy rewards and cheeseburgers, and driving and fast food, and video games, etc. It ends with the mother of the man feeding him as a toddler, some French fries.

This leaves the viewer with the distinct idea that the mother set her child on a journey that ultimately resulted in his death, and that the man was to blame for his eventual fate. It even leaves the impression, that somehow the occasional treat (ie. birthday cake, and suckers for school performance) are unhealthy. I’m somewhat surprised that it doesn’t trot out a can of formula with the rest of the cliché about overweight and obesity and mother blame. It is simple – and it validates the judgement that many seem more than willing to pass on those who struggle with their weight. Further, it justifies the feeling that those who do not struggle with their weight have somehow made the “right” choices, rather than merely being the beneficiaries of the “right” environment.

This neglects the reality of the problem – and propagates the assumptions and myths about those who are obese. It justifies judgment and limits the capacity for compassion and understanding that are really needed to address the problem and strive for a healthier future. In truth, the Huffington Post video is about as helpful in understanding the problem of obesity and the health challenges it presents as an airbrushed picture of a super model is in forming a fair standard by which to judge one’s own self.

It is far easier to tell the obese to exercise more and eat less, than to take a step back to try to understand their lives and the context in which they live, and working with them and empowering them to work towards a healthier future. It is far easier to blame mothers, than to build parks and communities that support families in a healthy lifestyle. It is far easier to assume that a person is fat because they are lazy and without will power, than to understand that their obesity is a symptom of another underlying health problem – after all having a bum knee might make going for a walk a challenge, and the wait to access care might further add to their waste line, or perhaps they are taking a medication that results in weight gain or are struggling with depression. It is easy to criticize a person who drives everywhere – and far more challenging to understand why they must drive in the first place (houses are cheap in the suburbs, they travel with small children, etc.). It is difficult to understand, that for some obesity is an occupational hazard. It is easy to make assumptions about people and why they do what they do, and it is far more difficult to actually understand the lives of people, and the kinds of things that actually make a difference to the outcome.

Shame rarely causes change – but it is highly effective in generating stigma, and stigma rarely results in good health. If we want to tackle obesity (or any other public health challenge), we need to start with compassion and understanding. We need to start by doing what is perhaps most difficult, accepting people for who they are and that means empowering them and accepting their choices even if they are different from our own. It means changing the context in which choices are made in the first place.

Thursday, July 31, 2014

Patients: the Secret Sauce in Healthcare

The healthcare system is complex. It is doctors and nurses and a whole cadre of other healthcare professionals. It is hospitals and clincs. It is long term care facilities and assisted living homes. It is Ministries of Health and a whole web of policies and academics. It is technology and procedures and pharmaceuticals. It is an eco-system unto itself.

A lot of thought has gone into what the health system is, and what is spent on it. A lot of thought has been given to how it works, and what it produces.

Sometimes it seems though that for all the thinking, for all the measuring and analysis, for all the policies and resources that go into the "health system", all the lip-service paid to "patient-centred care" that we have managed to miss the really big picture in two very important ways.

First, I think the health system has lost sight of the ultimate goal - the improvement of the population's level of actual health. The enhancement of well-being, relief from suffering, disease and disability.

Second, I think the system will continue to fail to meet it's real goal until it takes a fresh approach to how patients are viewed in the system and it takes meaningful steps that reflect the new approach.

The traditional view of patients in the healthcare system is "as products", patients enter the system and have things done to them at the advice of their doctors and as a result of those things done they either get better (or don't). The traditional view of the patient by the system seems not to care (and may even prefer) a disengaged patient, a patient that is not an active participant in their care but rather a passive receipient. This view of the patient works well under a system that views as products procedures completed, visits completed and might be sufficient in a system that focuses and addreses acute care needs with limited treatment options. It is similar to an appliance repair business that handles discrete problems and then moves on to the next discrete problem. However, there have been some rather large shifts that have made the traditional view of the patient very anachronistic.

Patients are not like cars or televisions, they cannot be viewed as an "end product" of the system or even as having needs that are strictly "discrete". Further, the patients of tomorrow, the ones that are going to be hitting the system hard in the years to come (Boomers, X's, Y's, Millenials, etc.), are socially very different from their predecessors. They have been challenging authority for decades. They are connected and educated. They refuse, in many ways, to be cogs in a system. They value different things and see themselves in different ways. In many ways expect the changes that have been observed in modern high-performance workplaces and education systems, to be carried forward into the healthcare system as the users of that system change.

As much as the system needs to view patients in a fresh way, patients will demand to be viewed in that new way.

The fresh approach to "patients" (and by extension their informal caregivers) in the healthcare system is to view them as having a role and an importance that is paramount to doctors, to nurses, to hospitals, to technology, to drugs. It is an acceptance of the fact that much of the "productivity" of health care, the ability of health services to result in meaningful improvements in health and reduction of suffering and disability relies critically on what patients choose to do or not do.

It is a transformative shift in perspective, that when taken seriously has tremendous potential to take the health system and what it can do to the next level. It is a shift that empowers patients to make decisions that have meaningful impacts. It is a shift that recognizes that care capacity is not limited to resources within the system. It is a shift that recognizes that patients want information, want to collect information, want to analyze information, and want to act on the information they have (this means very much so that the public in general and patients in particular will both want and need to use performance indicators of the health system to inform decisions). It is a shift that transforms the patient from an object to which things are done and recognizes the patient as person, with thoughts, with responsibilities, with rights.

It is a shift that opens up a whole new world of potential to increase the productivity of the system.

Tuesday, July 29, 2014

Mudita (Joy in Other People's Joy)

Mudita is the pleasure that comes from delighting in other people’s happiness, in other people’s good fortune. It is the opposite of the more well-known ideas of envy (displeasure at another’s success) and Schadenfreude – the experience of joy in other people’s suffering.

Perhaps one of the greatest rewards of writing this blog has been the tremendous potential for me to personally experience Mudita, particularly when a mother is able to access the care she needs when she needs it and has a healthy and happy outcome as a result. It is the feeling of Mudita that is a tremendous motivator for me to continue doing what I do and to seek to do more of it – truly there is little that I find more rewarding and fulfilling than the taking of joy in other people’s joy.

As such, when I received an email the other day with an update from Cesarean by Choice mom announcing the healthy and happy arrival of her daughter – it felt as though I had personally won a lotto of sorts. As such, I am pleased to share the email I received from the mother, describing the arrival of her daughter*

July 25, 2014

Hi Janice,

Baby Chloe* made her debut a bit early! She was born on July 4th via c-section at 37 weeks 1 day.

My water broke at 4am and we headed to the hospital. We were spending the weekend at our family cottage so we were almost 3 hours away. They requested we stop at the closest hospital on the way to make sure it was safe to continue the drive. Contractions started at 6am, just as we were cleared to continue our drive.

Labour progressed rapidly and contractions were less than 5 minutes apart by the time I got to triage. My husband was amazing and advocated for me with the on call doc and residents. Everyone was very accommodating and the c section plan was confirmed quickly. By the time I got to the OR, the contractions were less than 1 min apart. I was worried that I would be forced to attempt a vaginal delivery if I progressed too far. In an attempt to avoid this I declined all cervical exams.

Labour is not something I want to experience ever again - even though it was "only" a few hours, it was absolutely terrifying. I don't even want to think about how awful delivery would have been.

My c section was amazing, and absolutely the right choice for me. Breastfeeding was successfully established in recovery and we have had zero issues so far. My recovery has been amazing. I only needed Tylenol for pain, and I was back to normal very quickly. I feel incredibly lucky to have avoided a vaginal delivery. I have 3 close friends that had babies in June, all delivered vaginally, and they are all jealous of my recovery as they each had complications (severe tearing, shoulder dystocia, instrumental delivery with episiotomy). Anecdotal evidence is the best kind :)

I don't think I can say this enough - thank you. I am so happy that I found you online. You have made such an impact on our little family.

I’d like to offer my heartfelt congratulations to this family, and my wish that the mother finds her days filled with Mudita as her daughter grows. I’d also like to thank the mother for sharing her story with me, and for allowing me to share it with my readers. Further, I’d like to thank the OB who provided this mother’s care and the team that saw to the healthy and safe arrival of her child – and her husband, for advocating and supporting this mother throughout her pregnancy and the arrival of his daughter.

*Not the mother or baby’s real name – names have been changed to protect the identities of those involved, even though the story is shared with permission from the Mother involved.

Monday, July 28, 2014

The Days and Weeks that Don't Count

My mom is facing a health challenge - she finds herself in that position that none of us really want to be in, living with a medical condition and going from "person" to "patient". It is non-life threatening, but she finds herself debilitated in a number of different ways. She wants to go back to normal, back to a level of health where she can enjoy her life, back to a level of health where she can go back to work. She wants to be able to retire in a few short years, she wants to be able to play with her grandchildren. She wants to resume an active lifestyle - and is finding navigating the system "a challenge". She has a diagnosis (and has had one since the beginning of June), she has already underwent an MRI (out-of-pocket) and will undergo another in August. She has been seen by a neurologist. And is waiting to be seen by a neurosurgeon. She does not know who she will see, or when. Once she does see a neurosurgeon, she will then know whether or not treatment will be recommended, and then, if treatment is recommended she'll have some idea of how long it will be until she can start on the road to recovery. In the meanwhile, she waits. Days and weeks, and months passing, life for her is being taken in a day-at-a-time chunks. But these days and weeks don't count, she is waiting but the "official" clock has not even started to tick. Because wait times in Canada are not measured from diagnosis to treatment, rather they are measured from the time the specialist (in this case the neurosurgeon who she does not yet even know the name of and does not yet even have an appointment date) makes the booking with the hospital to have the treatment done.

I cannot help but think of all the patients, who like my mom are waiting, about all the time that doesn't "officially" count. All the time spent living lives less than what might be possible after being treated.

I cannot help but worry about the human cost of waiting. The human cost of foregoing the fullest life possible. The human cost of having one medical problem snowball into other medical problems. The toll on relationships.

Surely, the system could work better for patients. At the very least it could provide better information so that those who are in the system have a better idea of how long their lives are likely to be put on hold. It could also better empower patients by providing information on not just the local care options, but also on the alternatives at least within the same province. Further, it could better measure and reflect the actual experience of patients to at least validate the time that currently "doesn't count", because it is time that most definitely does count to those who are waiting to access the care that they need.